NORD is dedicated to supporting education, elevating care, advancing research, and driving policy for rare diseases

Core values

- **Awareness and Recognition**: NORD works to raise national awareness and recognition of the challenges faced by people living with rare diseases, which helps in reducing stigma and misconceptions[1][3][5].
- **Access to Care**: The organization strives to ensure that people with rare diseases can secure access to care that extends and improves their lives, addressing health inequity and access to treatments[1][3][5].
- **Research and Innovation**: NORD supports the advancement of research and the development of new therapies, which is crucial for improving outcomes for individuals with rare diseases[1][3][5].
- **Policy and Regulatory Environment**: NORD advocates for a regulatory environment that encourages the development and timely approval of safe and effective treatments, which is essential for the well-being of patients with rare diseases[1][5].
- **Community and Patient Empowerment**: The organization empowers patients and advocates, fostering a sense of community and collaboration, which is vital for positive change and improved quality of life[1].