National health charity working to help Canadians with cystic fibrosis live longer, healthier lives. En français : @fkcanadaCystic Fibrosis Canada is a national charitable not-for-profit corporation committed to finding a cure for cystic fibrosis (CF). We invest more in life-saving CF research and care than any other non-governmental agency in Canada.

Core values

- **Addressing Societal Needs and Issues**: The study aims to examine the social and economic impact of cystic fibrosis on individuals, families, and society, providing a comprehensive understanding of the disease's burden[3].
- **Improving Quality of Life**: By gathering data on time and money spent on treatments, hospitalizations, and other aspects of life with CF, the study can inform programming and advocacy efforts to improve the quality of life for those affected[3].
- **Promoting Positive Change**: The findings will help shape Cystic Fibrosis Canada’s programming and inform decision-makers, potentially leading to better support systems and resources for the CF community[3].
- **Contributing to Community Well-being**: The study involves the CF community directly, encouraging participation from those living with the disease and their caregivers, which can foster a sense of community and support[3].