National charity working for everyone affected by genetic, rare and undiagnosed conditions. We run the campaign Rare Disease UK and support network @SWAN_UK.

Core values

- **Support for Rare and Genetic Conditions**: Genetic Alliance UK supports over 3.5 million people in the UK affected by genetic, rare, and undiagnosed conditions, which is approximately 1 in 17 people[3][4].
- **Policy Influence and Advocacy**: The organization influences national policy, ensures timely diagnosis and coordinated care, and advocates for better access to new technologies and treatments[1][3].
- **Community Support**: It provides critical support through initiatives like SWAN UK for families with undiagnosed genetic conditions and Rare Disease UK, which campaigns for a strategic approach to rare diseases[1][4].
- **Education and Awareness**: Genetic Alliance UK publishes guides, newsletters, and conducts research to raise awareness and improve understanding of genetic disorders[2][4].
- **Collaboration and Impact**: The organization works collaboratively with various stakeholders, including healthcare professionals, industry, and other patient groups, to drive positive change and improve the quality of life for those affected by rare and genetic conditions[3].