Sharing Data. Building Knowledge. Improving Care. NIH-funded resource established in 2013.

Core values

- **Addressing Societal Needs and Issues**: The ELSI program focuses on critical areas such as the use and interpretation of genetic information, clinical integration of genetic technologies, issues surrounding genetics research, and public and professional education. These areas directly address concerns about discrimination, stigmatization, and medical harm, which are significant societal issues[1][3][5].
- **Improving Quality of Life**: The project aims to enhance the understanding of genetic disorders, leading to improved detection, diagnosis, and ultimately treatment and prevention of diseases. This can significantly improve the quality of life for individuals and their families[1][3][5].
- **Promoting Positive Change**: By stimulating public discussion and developing policy options, the ELSI program promotes informed decision-making and responsible use of genetic information, contributing to positive societal change[1][3][5].
- **Contributing to Community Well-being**: The program's emphasis on public and professional education, as well as policy development, ensures that the benefits of genetic research are equitably distributed and that the community is well-informed and protected[1][3][5].