MDA is the #1 voluntary health organization in the United States for people living with #MuscularDystrophy, #ALS, and related #neuromuscular diseases.MDA is the #1 health nonprofit advancing research, care and advocacy for people living with muscular dystrophy, ALS, and related neuromuscular diseases.
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- **Research and Treatment**: MDA invests significantly in research for neuromuscular diseases, including ALS, Duchenne muscular dystrophy (DMD), and limb-girdle muscular dystrophies (LGMD), which can lead to breakthroughs in treatments and potentially cures[1][4].
- **Clinical and Support Services**: MDA provides vital care and support to over 70,000 unique patients through its network of care centers, ensuring high standards of excellence and accessibility[4].
- **Advocacy**: MDA advocates for policies that increase access to crucial care and services, speed up the development of vital therapies, and promote inclusion in everyday life. This includes successful efforts to pass the ACT for ALS and the Newborn Screening Saves Lives Reauthorization Act[1].
- **Community Engagement and Education**: MDA engages the community through various programs, such as the Quest Media Platform, which facilitates knowledge sharing, collaboration, and amplifies patient voices. It also supports education and mentorship programs, particularly in STEM fields[1][4].
- **Volunteerism and Community Impact**: MDA volunteers contribute significantly to mission programs, including advocacy, summer camps, and mentorship, which collectively enhance community well-being[4].
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MDAorg
2025-02-20 15:00:01
🚨 Save the Date! On March 15th the MDA Atlanta Night of Hope Gala returns to raise hope & critical funds for ALS research. This year, we honor @ChoateCo & share the inspiring story of the Byars family. Join us & make an impact: https://t.co/IRKvJVCJJa https://t.co/nLG23R0iRt
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